Well… I started this blog to tell people about the world of Motherhood and having epilepsy. I’m Samantha, I have had epilepsy since I was 2.5 years old. Medication was never able to completely able to control my epilepsy, we eventually found out I have refractory epilepsy. I went through most of my early childhood with drop seizures and absences, they slowly progressed into simple and complex partials and by the time I was in middle school I was having daily tonic clonics. In high school I was controlled briefly and was able to get my drivers license, success! I graduated and went to college, however, that did not last long. I was not very successful in college. In 2003 I met who I had no clue would soon become the love of my life. In early 2004 a day before getting admitted for a VEEG Greg proposed to me, I swear he had no clue what he was getting into.
And in 2005 I got married to my best friend and love of my life Greg. Sadly, the honeymoon did not last long, my seizures suddenly started acting up and got much worse and were uncontrollable, my life was in a downward spiral.
Where to go from here? Together we decided to see a new doctor and they recommended brain surgery… eesh! After a year of grueling testing (emotionally and physically) I was approved for surgery. I had 4 actual surgeries and two hospital stays – the grids didn’t work the first time. August 15th will make 3 years since my final surgery. I can’t say I have been seizure free, but I will say it’s been successful in my eyes. I lead a much more fulfilled life now then I ever did before.
Now onto the kids! After my last surgery I had to go for follow ups every few months, a couple of appointments in I asked if it was okay to get pregnant (4 months post surgery)? The doctor said yes! And much to our surprise, we were pregnant right away with our now 22 month old son B. A little over a year later (we wanted our kids close in age) we started trying again, and again it took not time and we our now 9 week old, E. Both of our kids are healthy despite me being on 2 to 3 anti epileptic medications each time . We have been very blessed. Everyday I thank god for our little miracles.
Now the reason for the blog. The blog is for me, women and men who want to be parents and have epilepsy, and those people who mis-understand those who are parents and have epilepsy. And of course anyone else who wants to read it.
What is it about? It’s about my experiences and trails as a mother with epilepsy, how being a mom with Epilepsy can make people treat you different, and how my children are affected by my epilepsy.
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